Saturday, June 30, 2012

Spiritually Speaking

I cannot tell this story without speaking to it from every angle.  In the future I will be posting  things of a more practical nature like:
     -Hospital Helps
     -Things I would say....to doctors, teachers, friends, strangers, etc.
     -When we're tempted to give up or give in
     -What to say to hurtful jerks!
     -Special needs people are not special
     -Where special needs people fit into political correctness and diversity

For now though, I want to establish that this has been as much, if not more of, a spiritual journey for me than a natural or emotional one.  So to write without mentioning the spiritual experiences would be to neglect the most important factor in all the other things I will write about.

Some have said "attitude is everything".  I have found that to be so true.  And having a solid foundation of faith in Jesus Christ before this happened is what sustained me through it.  I found myself put in the position where I was forced to determine what I believed and to put that belief into action.  It was all that I had.

I can honestly say that if I could go back and change what happened if I would give up all that I saw God do, all that I learned about God, how He revealed Himself to me and worked in my situation, I couldn't do it.    Part of this is because "life gave me lemons...so I made lemonade."  I could only do this because of what I already knew and had experienced with God.  My attitude, my outlook and my hope for the future were all in Him and He did not disappoint.  In fact, He wowed the socks right off me!

Some of what I might share will sound foreign to some Christians and certainly to those without any religious training or leanings.  Some of it might make you mad because I may say the exact opposite of what you've been taught or what you have believed in order to survive where you are as a mom with a disabled child, but it's what I believe and it's worked well for me.  Furthermore, it's based on scripture and actually when thought about makes perfect sense.  Understanding brings peace, hope, security and a proper perspective that helps this life that has chosen us make sense.



Monday, June 18, 2012

When The Rubber Leaves The Road

They say that when life happens...when the rubber hits the road...you find out just what you're made of.  For me, that didn't  really happen until the rubber left the road and landed in a crumpled heap on a seemingly ordinary Tuesday morning.

It was a typical March morning.  Breezy, chilly, but sunny.  The beginning of a week long holiday.  My children  (then ages 2, 3,5 and 13) would be vacationing with Grandma.  My husband and I would be driving two days west with his staff to attend a conference.  Even though technically it was a "working" vacation, a week away from the diapers, the potty training, the crying, the interrupted nights, and a budding teenager seemed like a vacation to me.  I packed the kids in the van and started out on my way to leave the kids and the van with my mother-in-law.  My husband followed a half hour behind in the car we would be taking to the conference.

Half an hour away from Grandma's house, the car began to sputter-water in the gas tank?  Even with the gas pedal all the way to floor, the speedometer topped out at 35mph.  Because we were on a small state highway, barely more than a country lane, there were no gas stations or even places to pull over.  In front of me loomed one of the highest mountain peaks in PA and I wondered how we would make it over.  From the sky the first evidence of a snow storm began to flutter to the earth and that made me a little more nervous because the road over the mountain was not much wider than the one we presently traveling.  We rounded a corner that began the descent into a small village that lay right at the base of the mountain.  As I looked out the driver's side window it seemed that the back of the van was now somehow beside the van and I realized that we were sliding.  I briefly saw a telephone pole right on the berm of the road and quickly prayed that we wouldn't hit it.  It was too late.

The driver's side rear quarter panel and the side of my daughter's head slammed into the telephone pole.  The van bounced off the pole and off the road, rolling down the 15 foot bank on the side of the road and dragging my  5 year old's head on the bare ground.  We came to a stop at the bottom, resting on the driver's side.

All was quiet.  All but one of us was unconscious.  He dangled from his car seat still buckled into the passenger side seat as he gazed at his Mamma who was not moving or talking.  When I was awakened by the annoying smell of smelling salts, the van was empty except for my dangling son.  They removed him, totally unharmed. to a home across the road and two firemen dragged me from the vehicle.  Outside of the van, scattered all over a small field, lay all of our personal belongings.  It looked as if a bomb had exploded and had thrown their toys, bed rolls, pillows, potty chairs and clothing all over the ground surrounding where we had come to rest. As I surveyed the carnage, my eyes fell on three of my children laying on the ground side by side.  It reminded me of a mini-version of the scene from Gone With The Wind where the thousands of wounded are laying in rows.  The two babies were still and pale, lips blue, blood stained. I heard a man telling two paramedics that the two little ones had no vital signs and for a few moments what he said didn't really register.  I was still taking in the snow, the field, the fire trucks, the ambulances, the medical personnel, and the tow trucks.

My oldest daughter was  now conscious and looked over at me with tear filled eyes.  All she said was "Mamma, you need to pray!"  And I did. It was like no prayer I had ever prayed in my life.  Turns out it was probably the shortest, most effective prayer I have ever prayed.  When I was finished, an oxygen mask was slapped on my face and the paramedic said, "take deep breaths, Mam."   (I think the prayer scared him.  Honestly, it surprised me too!)

So many thoughts crossed through my mind as I stood on the side of the road and then as they walked me across the road to the house where my dangling son had been taken.  It's funny to me how foggy, yet how clear your thoughts can come in those instances.

Eventually my husband appeared in the doorway of the house as the paramedics came in to take me to the hospital.  I didn't realize that they had moved me away from the young children because they were pretty sure that they were dead and they didn't want me to know.  In the ambulance, I started to thaw out.  The snow storm had come quickly over the mountain after the crash and we had almost froze to death, which turned out to be a blessing for my youngest ones because it slowed the bleeding in their brains.  As they threw warmed blankets on my body and heated IV liquids into my bloodstream, I clung to the hand of the paramedic asking over and over again "How are my babies?  Are they okay?  Where are they taking them?"  The driver, not wanting me to hear, turned down the radio.

We arrived at the nearest medical center which looked more like a veterinary clinic.  They really weren't equipped to handle an accident or injuries of this magnitude.  After some conversation with my husband in the waiting room they decided to transfer the whole lot of us to the nearest trauma center which happened to be in Hershey, PA.  Hershey was soon to become my second home and would become much sweeter to me than the chocolate they make there.


Welcome to Didn't Sign Up For This

I never signed up to have disabled children.  I guess most women don't -except for those unique families who see it as a calling or ministry.  I dreamed of having a house full of healthy, happy children-perfect and normal in every way.  And that's exactly what I got.  Until we had a devastating car accident.

In a matter of one second I went from being a mother of 4 healthy children to the mother of 4 children, two of which were  now severely brain injured.  Funny how quickly and completely life can change.

Caring for disabled children was one of those things I neither felt graced to do or ever wanted to do.  All that I had heard from other mothers who had disabled children just sounded too hard and I quickly came to the conclusion that I was not cut out to do it.

Funny how quickly our perspective can change.

Funny how quickly our priorities can get re-adjusted.

Funny how when the rubber hits the road, you find yourself willing and wanting to do things you never imagined.  You may leave skid marks along the way.  There may be times when the rubber leaves the road again and times when the stench from the burnt rubber is almost unbearable. But eventually we will all reach our destination.

This blog is a collection of the thoughts, trials, victories and revelations I have had as a mother of two brain injured children.  It is a blatantly honest, sometimes raw re-telling of where I've been and where I am and where I hope to be in the future.